Lyme Update

This is a long overdue update, and for that I apologize. I’ll try to make this as comprehensive but brief as possible as I know some of you are curious as to what is going on.

For starters, Friday is my last day at my current job. I know many of you that are reading this don’t know this news and will likely be surprised. I’m surprised too, but it’s a decision that had to be made. Non-profit gigs do not pay well, at all. And with a disease like Lyme, which is a costly disease to treat and manage, I had to make some very difficult decisions about my employment. Early in January I officially turned in my 4 week notice and as of next week, I’ll be back in Medical Device Sales. This move will allow me additional financial opportunities to fund the growing expense of my treatment. 

Some have questioned my decision to move on. All I can say is that when you are facing 2(+) years of treatment that isn’t covered by insurance with nearly a $40K price-tag, you have to do things you don’t want.

With regards to the Lyme, I’m still on-hold from antibiotics. My taste hasn’t come back and although I’ve been able to gradually increase my caloric intake from 600 calories a day to almost 1,200, I’m still lacking in some of the basic nutritional categories. Protein still remains a struggle and for that, I’ve turned to juicing to help out. I’m now averaging 1-2 homemade juice drinks a day, made from fresh organic produce. I try to get 2/3 veggies and fruits in each drink, which helps with rounding out my diet. Otherwise, white rice is still a big favorite in my diet.

On the appointment front, I finally have a Dr.’s appointment with the University of Pennsylvania Sm.ell and Tas.te Disorders Clinic the first week of March. I’m hoping that this appointment will help determine what went wrong with my senses.

Otherwise, I’m still trucking along over here. No significant improvement or deterioration. Just hanging on.



2 Comments (+add yours?)

  1. someday-soon
    Jan 27, 2014 @ 16:51:31

    It sucks to be an adult and make all the “right” decisions {{{HUGS}}} Hope your appointment in March gives you some answers.


  2. Geochick (@geochick_1)
    Jun 18, 2014 @ 21:10:37

    What a hellacious journey. I’m sorry you had to leave your job because of this disease. 😦


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