LLMD appointment tomorrow

Tomorrow is my long awaited next steps appointment for the treatment of my Lyme. It was originally scheduled for December, but things got mixed up with work, so now I get answers sooner.

I can’t even begin to explain the swell of emotions that are accompanying this appointment. I know that logically, tomorrow I will find out the plan to make me feel better. But I’m scared of the treatment. I’m scared because I’ve read the hell that so many Lyme patients describe from antibiotic treatments that can last years. I’m scared because I don’t want a PICC line or a Port to pump high doses of medicine in my body.

Matt is going to take the day off tomorrow and drive the 2 hours northwest with me to my appointment. Last time I was so overwhelmed with all of the information, I wished I would have had someone else there to help me remember everything.

All of my lab tests have come back and we will review everything in detail. Here are some of my specifics:

C4a – 9690 ng/dl (range 0-2830)

CD57 Lymphs – 44 (range 60-360)

EBV AB IG – 2.76  Index (<=.90)

DNase-B Antibody – 531 u/mL (<301)

Human Trans Growth Fact. beta 1 (TGF -b1) – 3500 (range 344-2382)

Thyrogloublin, Antibody – 7.0 ( range 0.0 – 0.9) – helllllooooo Hashimotos

Thyroid Peroxidase (TPO) – 362 (range 0-34) Thyroid disease, anybody/?!?!

Alkaline Phosphatase – 134 (range 42-107)


Mainly, all the labs above will be the key markers that we discuss for whatever lyme strain I have been infected with.



2 Comments (+add yours?)

  1. Katie
    Nov 20, 2013 @ 13:17:35

    Big hugs. I will be there in spirit. Please let me know how it goes. xo


  2. Rebecca
    Nov 21, 2013 @ 19:02:28

    Thinking of you and hoping everything went well today.


Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google+ photo

You are commenting using your Google+ account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )


Connecting to %s


Wife, Mother to a toddler and Infertility Survivor

The Long Dark Hallway

Life after Infertility and now living with Lyme Disease

The Draugelis Blog

Singing in the Raines....now Pax, too.

Life of a Leo

This is my life, I go by many names: mommy, military wife, daughter, best friend... welcome to my world!

Hoping For a Baby

My journey through infertilty treatments

Run Amok Amok

life - liberty - and the pursuit of trying not to lose my mind

A child to call me mama

a blog about infertility and endometriosis...and now adoption and parenthood!

B a b y B o u n d

Suck it, infertility... .i..

%d bloggers like this: