Lyme Treatment Day 1

Day 1.

Lyme 2

Yesterday was the first day of my Lyme Disease treatment. After my appointment last Thursday, I prepared the huge list of medicines and organized the 30 pills that I have to take daily into little boxes.

In hindsight, I should have probably written this post BEFORE day 1, because now, being 24 hours in, I am a jittery anxious mess. My assumption is that it’s just my body getting used to the heavy dose of antibiotics and neurological drugs that are coursing through my system.

My LLMD (Lyme MD) – told me that weeks 5-7 would be the worst, so I had no expectations that I would feel like this so early. Honestly, I feel like a big ass wimp.

My thoughts are all scattered, I spent the whole night gritting my teeth and dreaming off and on about dinosaurs with no skin, just bones.

I think the drug that is making me feel this way is the Low Dose Naltrexone.

We will see. Let’s pray that the rest of this week gets better as I adjust. I am so grateful I have this week off work.





LLMD appointment tomorrow

Tomorrow is my long awaited next steps appointment for the treatment of my Lyme. It was originally scheduled for December, but things got mixed up with work, so now I get answers sooner.

I can’t even begin to explain the swell of emotions that are accompanying this appointment. I know that logically, tomorrow I will find out the plan to make me feel better. But I’m scared of the treatment. I’m scared because I’ve read the hell that so many Lyme patients describe from antibiotic treatments that can last years. I’m scared because I don’t want a PICC line or a Port to pump high doses of medicine in my body.

Matt is going to take the day off tomorrow and drive the 2 hours northwest with me to my appointment. Last time I was so overwhelmed with all of the information, I wished I would have had someone else there to help me remember everything.

All of my lab tests have come back and we will review everything in detail. Here are some of my specifics:

C4a – 9690 ng/dl (range 0-2830)

CD57 Lymphs – 44 (range 60-360)

EBV AB IG Р2.76  Index (<=.90)

DNase-B Antibody – 531 u/mL (<301)

Human Trans Growth Fact. beta 1 (TGF -b1) – 3500 (range 344-2382)

Thyrogloublin, Antibody – 7.0 ( range 0.0 – 0.9) – helllllooooo Hashimotos

Thyroid Peroxidase (TPO) – 362 (range 0-34) Thyroid disease, anybody/?!?!

Alkaline Phosphatase Р134 (range 42-107)


Mainly, all the labs above will be the key markers that we discuss for whatever lyme strain I have been infected with.

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